UPDATE: Cinderford DJ, Ian Jenkins has offered to help the family so the fundraising family disco is set to go ahead on October 12th.The family of Oscar Saxelby-Lee are desperately pulling out all the stops to try to save the little boy’s life, once again.

Earlier this year they campaigned for people to get tested for a bone marrow match. Thousands of people did and Oscar received a transplant and to his family’s great joy Oscar was cancer-free. But now his parents have been told that the disease is back.

Oscar’s Great Aunt, Mandy Robinson, who lives in Ross and organised swab tests for hundreds of local people as well as fundraising to help the family, is devastated at this latest turn of events.

Together with her daughter, Sophy Henderson, she is organising a fancy dress family disco on October 12th at Ross sports centre. They are appealing for a DJ to offer their services free for the event and are determined to make this event happen.

It will take place a day after his primary school, Pitmaston, in Worcester organises an Oscar Day when they want everyone to wear their own clothes and pay £1 to help pay for the treatment which could save his life.

Oscar is just five years old and was diagnosed with high risk T-cell Acute Lymphoblastic Leukaemia in December last year. Earlier this year, and after scouring the globe for a suitable match, Oscar received a stem cell transplant which worked to keep the cancer away for three months. But devastatingly the results from Oscar’s most recent tests show that the leukaemia is back.

Sadly, this specific leukaemia is particularly aggressive and at present Oscar has no guarantees of making it to his sixth birthday. Having been told it is unlikely there are any curative treatment options left for Oscar available on the NHS, Oscar’s care team is currently looking at the possibility of Oscar receiving this treatment as part of a trial.

They are also looking at the possibility of a second bone marrow transplant that will also, most likely, need to take place outside of the NHS. Currently, the NHS can typically only offer a second transplant to patients twelve months on from their first transplant. With the nature of Oscar’s disease, there simply may not be enough time to wait that long.

Oscar’s parents, Olivia Saxelby and Jamie Lee have set up an appeal to raise in the region of £500,000 to make this possible.